Are You Listening?

My daughter called me this evening and she was frustrated with the communication in her family. She is married and has a step-daughter age 11 and two boys 5 and 15 months. She was frustrated with her husband’s and 5-year-old son’s listening skills, or lack of. She also felt like they were indicating that she was the one that was unrealistic with her expectations.

We talked at length about why she has the expectations that she has and of course I don’t think they are unrealistic, but they are different from her husband’s for obvious reasons. She grew up with a hearing impaired parent and he did not. We practiced communication courtesies that other households can get by without.

When my girls were growing up, as my hearing worsened over the years, we, as a family, had to make adjustments. It became impossible for me to understand what a person was saying if I could not see his or her face. We stopped the practice of a raised voice trying to get someone’s attention from another room. Although the girls sometimes tried to get me to come to them with a loud, “MOM,” we worked on enforcing the rule that if they had something to say to me, they had to come to me. In return, when I could, I stopped what I was doing and listened.

Going to another room in the house or up the stairs to talk with someone may not sound like such a big deal, or stopping to listen, but if you have to stop what you are doing every time one of your 3 children needs to talk to you, a simple task like cleaning up the dinner dishes can take 3 times longer than it would if you could talk while you work. I remember many evenings when the dinner conversation continued on into clean up time and stopping half way to the dishwasher with dishes in my hands to look at the daughter that was speaking to me. Sometimes, it felt like this simple chore took up half the evening.

There is a plus side though. The benefits of our focused communication far outweighed the increased time it took to get some things done. My girls knew when they had my attention, because I would be looking right at them. Wondering if I heard what they said was rare because they usually had to confirm it during the conversation. Distractions were not allowed because then I would not be able to hear, so the TV was muted or off and there was no background music playing on the radio or cd player. One complaint or argument you never heard in our household was, “You never listen to me!” We listened intently.

Our children’s teen years were not without problems. We were just like everyone else, but I think more tuned in. This allowed us to recognize problems early on. My keen sense of body language allowed me to realize when there were health issues that needed attention and might have gone unnoticed in a family with different dynamics. In this respect, my hearing loss was a blessing.

I’m sure you have heard it before and I’m sure you will hear it again, “communication is key in healthy relationships.” It is not too much to expect to be listened to.

Stunning - Susan Boyle

I have watched this YouTube piece several times now and I just can't seem to get enough. Like Piers says, this woman's performance of "I Dreamed a Dream" from Les Miserables is stunning. As Amanada said, it truly is a privilege to hear that , and the faces that Simon makes are priceless. He is fun to watch when he is impressed.

It is such an incredible joy to be able to "hear" a performance like that. To be able to hear the pureness of each note, the accent and the dynamics she put into her presentation. Watching the YouTube piece left me wanting more and I will definitely be watching for more from Susan Boyle.

It also left me feeling, once again, very grateful for my bionic ear; for the advances that have been made in inventions and medicine that allow me to hear with this amazing quality. All I have to do to know the alternative is take off my processors and there I am in the silence. What a relief and a blessing that I don't have to live the rest of my life in that place.

The title links to a closed captioned version of Susan Boyle's performance so you don't have to miss the dialogue. The button to turn on the closed captioning is the arrow pointing up in the lower right hand corner of the video window. If you decide to take a look, I hope you enjoy the performance as much as I did.

Spring Song

I started spring cleaning yesterday. It is not warm enough to open the windows yet, so I was working in my closed up house dusting out window sills when I heard his song. The male cardinal singing to his girl. It is such a beautiful song and I could hear it through the window. Wow - I could hear it through the window with my bionic ears.

We have a pair of cardinals that seem to come back here each spring. Last year I almost succeeded in getting a good picture of the male and this year I plan to. He is beautiful with his bright red feathers. His girl is a little harder to spot. With nature's natural protection for the mother of the offspring, she has browner feathers and blends in with the trees. I love watching these two flit around our yard and even better, I love that I can hear them. 

With the joyful sounds, come the annoying sounds and when I hear the squawking of the blackbird, I smile to myself and think, "Ah, yes, I must hear him too." And I remember when I couldn't hear him at all and I thank God for the blackbird's call.

It seems that I write about hearing birds a lot. With my hearing loss starting in the high frequencies, they were one of the first sounds that I lost, so I didn't hear them for over 20 years. It wasn't something that I dwelled on or thought a lot about, but since I have gotten that hearing back, I simply cannot take it for granted and continue to be amazed.

It is finally spring and with it comes nature's choir. Sometimes it is the hard rock of a blackbird's squawk, or the simple twitter of a sparrow, or the beautiful song of a bright red cardinal singing to his girl.

Mentors

Smiles and laughter, voices strong
A room full of friends with a common bond
Relationships growing, new and old
Lives changing from quiet to bold
Brought together in life
Because of stories we share
Paying it forward because we care
A new hand needs holding
A tear has been shed
We reach out and answer
To concerns we have read
Comfort our goal and hope we bring
To the pain and sadness the voices ring
We know the hardships
And we have come through
So we offer our knowledge to those that are new
Raising each other
To new heights we soar
Because when you give
You get back even more

Yesterday I returned from a weekend training session for Bionic Ear Association mentors. It was held at the Advanced Bionics offices in Valencia, CA. Cochlear implant recipients along with parents of children with cochlear implants were brought together to learn more: about AB’s implants; the numbers of people with profound to severe hearing loss; and how we can educate and help others with hearing issues.

The weekend carried a lot of impact, touching me in many ways. There was the impact of meeting people in person that I had only met through the internet. It took a lot of hugging to get caught up! Then there was the impact of making new connections, all of them strong. In the trainings, the impact of the up-to-date statistics regarding hearing loss was eye-opening and being given tools to share more effectively was exciting. Visiting the plant where the cochlear implants are made had an impact all its own. I haven’t yet discovered a word to describe how it felt to be where they built the devices that allow me to hear.

It was a wonderful opportunity and I am grateful for the people I met and all that I learned. Now I hope to put old and new knowledge to good use mentoring others with hearing loss.

Not a Minute Too Soon

I can hear the ticking of the clock on the wall

I can hear your footsteps as you walk down the hall

I can hear the laughter of the children in their room

The sounds of life came back to me not a minute too soon

My sadness overwhelmed me as my ears began to die

I often asked the Lord, if He could tell me why

But then He showed me there was hope up ahead

And to a hearing miracle my heart and life were led

I sat alone in silence for a period of time

The Lord, He said to me, “There is no reason why

But the lessons you will learn, and the things that you will know

Will settle in your mind and make your heart grow”

So I waited for the Lord to show me the way

I trusted He would take me where my heart was meant to stay

He walked me from the silence and back to the sound

And here I am again, my life is being found

I can hear the ticking of the clock on the wall

I can hear your footsteps as you walk down the hall

I can hear the laughter of the children in their room

The sounds of life came back to me not a minute too soon

Bird Talk

First, an update, my mother is doing well and statistics regarding sudden hearing loss seem to be in her favor. I think she is bothered more by the tinnitus than the loss of hearing as it is probably more noticeable. The tinnitus she is experiencing is intermittent and before I left, she seemed to think it was getting better and that maybe a little of her hearing had come back. She sees her doctor for a recheck in a few days. She also contacted a friend with hearing loss and asked about her experience. It turns out that it is similar to what my mom is going through. I’m glad she has someone to talk to as my hearing loss experience is very different from a sudden loss.

My sister went with me to visit our parents and I picked her up as it was on the way from where I live. In the past, I would have handed her the keys and asked her to drive so we could visit. Before my cochlear implants, I would do that so I could read lips, which is difficult to do when you are keeping your eyes on the road, so I would often ask whomever I was with to drive. After my first cochlear implant, which is on my left side, I would be arranging people so I could hear them easier or using a nifty little remote microphone that I would have pinned to my sister’s clothing and then plugged it into my behind the ear (BTE) piece so I could hear her. Those were adjustments I needed to make before being bilateral. Wow – being bilateral. I drove, we talked, no problems.

I had one other CI moment that was fun. The weather was warming and we had a spring like day, so my sister, my mother and I walked over to a nearby mall. While we were there, we stopped in a pet store to look at the puppies. As I was oohing and aahing over the cute little animals, I could hear birds chirping behind me. I turned around to see a beautiful yellow cockatiel singing to me. I puckered up and gave it a whistle back and he returned his song, so I whistled again. We were going back and forth like that and I was thoroughly enjoying being able to hear him and hear myself whistle back, when I glanced over my shoulder and noticed my mother watching us and smiling. Not too long ago, my mother shared with me that she is still amazed at what my bionic ears do for me. I love that she was able to witness that moment and share the joy.

My mother called...

My mother called this weekend and shared with me that she couldn’t hear the dial tone on the phone as well with her left ear as she could with her right and she was also hearing a funny shwooshing sound in her left ear. She said it had just started a few days ago. Up until this point, she has enjoyed excellent hearing.

I have heard many stories about causes of hearing loss having participated in forums for hearing impaired. I told my mother that she needed to be seen by a doctor right away, first to rule out wax or fluid build up. If those things are ruled out, then they might need to treat her for conditions that need immediate treatment to save the hearing.

My mother is healthy at 73, but not assertive. She did see her doctor today and there was no wax or fluid. The doctor couldn’t see anything. She made an appointment for her to see an ENT in 17 days. When my mother called me back to report, I was upset. I said, “You have to be seen today.” She called her doctor back and they managed to move it up 7 days. In the mean time, I called my doctor’s nurse and told her what was going on. She told me what I knew to be right. My mother needed to be seen right away. As I was preparing to call my mother to get the name of her doctor and nurse, so I could get on the phone with these people, my mother called back with news. The nurse had called her back and made room on the schedule for her, but she had to come in right away.

She had already been there and been tested when we connected on the phone. Unfortunately her test showed a significant drop in the left ear. Her right ear remains normal. This did allow them to see that it was not a slow age related decline and they needed to consider what else might be going on, so next she saw the doctor.

The doctor talked to her about the window of treatment that may reverse the loss. Hopefully they were within the time frame of the window. He talked about it being 48 hours and the information I found on the internet indicated that it may be as long as two weeks. The doctor treated her with a steroid shot in the eardrum and wants to test her again in one week. Now we wait and hope.

At one point she said to me, “I don’t want to lose more of my hearing.” I sensed she had a hard time saying those words to me. I told her I don’t want her to lose any more of her hearing either. I love my cochlear implants, but I don’t want my mother to need them too. However, if it did come to that – Thank God they have been invented.

I will be driving the 400 miles to my parent’s house for a visit tomorrow. I will be trying to make the trip more often this year. They are traveling less and I need to see them more.